Understanding Genetic Testing & Sequencing – It’s Greek To Me
We have recently learned from the Mayo Clinic that our twins Addi and Cassi have one Niemann Pick Type C gene mutation that has been identified in their bodies — it’s called Exon 12 DNA Change...
View ArticleAmerican Heart Association Features Addi and Cassi’s Fatal Genetic...
Thank you to the American Heart Association for featuring Addi and Cassi Hempel’s story and increasing awareness of Niemann Pick Type C, an ultra rare and fatal cellular cholesterol disease that is...
View ArticleScientists at NIH, FDA & CDC To Hold Briefing On XMRV Retrovirus
Note: I plan to begin posting blogs about the XMRV retrovirus on Addi and Cassi’s website. Why would I start posting about XMRV when Addi and Cassi have Niemann Pick Type C disease, a fatal “childhood...
View Article
More Pages to Explore .....
